Listen Up

Monday, March 4, 2013

Health Care is not a Bank ATM

 

Many used to ask why they could go to a bank and insert a card and be able to do most of their banking with little effort.  The health care system bought into that concept and began constructing hardware and software to conquer the challenge.

Unfortunately Health Care is not a bank or an ATM.

The order of complexity in health systems which are based upon biological systems is almost infinite with this explanation given by Tim Cook and Dr. Luciana Cavalini's presentation at the OSS 2011 conference on multi-level modelling in healthcare.

 

Presentation at the 14th International Conference on e-Health Networking - Application and Services in 2012

Healthy Social Media Participation

 

Sunday, March 3, 2013

The Affordable Care Act Nobody Can Afford

 

Many people that Obamacare is now the law, there continues to be what is not a minority expressing their educated opinions that we are running to a catastrophic conclusion of this battle.

Although many point to the medical systems in the United Kingdom, Canada and elsewhere some in those systems are negative about the U.S.’s journey to Obamacare.

Canada Free Press

Among those are

Dr. Ileana Johnson Paugh, (Romanian Conservative)  a freelance writer (Canada Free Press, Romanian Conservative, usactionnews.com), author, radio commentator (Her book, “Echoes of Communism, is available at Amazon in paperback and Kindle. Short essays describe health care, education, poverty, religion, social engineering, and confiscation of property. A second book, “Liberty on Life Support,” is also available at Amazon in paperback and Kindle. A third book, “U.N. Agenda 21: Environmental Piracy,” is a best seller at Amazon.com under Globalism, Politics, and Environmental Policy.

Dr Paugh reflects upon how this change in American Medicine will effect freedom.

The plight of the physician who took an oath to care for a patient is real. The law and the accoutrements surrounding it, with a myriad collection of electronic documents,consent forms, and permissions to share protected information with a broad sweep of one electronic signature amounts to an extortion of consent (without which the patient could be denied a doctor’s care. Unknowingly physicians have become unwilling accomplices rule by attorneys, and organizations more intent upon protecting themselves than helping a patient become well again.

Case in point:

 

I was just handed the Phreesia computer tablet by the receptionist under the guise of updating my medical and insurance information. I had seen this orange notebook in another doctor’s office and I became suspicious. Is this really meant to verify, as the website claims, my insurance eligibility automatically and help doctors collect on their insurance while easing the load of paperwork? Or is it forced electronic data compliance to Obamacare?

As soon as I started reading each screen, I realized that it was asking me to consent to third parties to obtain my medication prescription history from my pharmacy and to my entire medical history.

I had the right to request and restrict as to how my protected health information was used or disclosed. However, when I declined to sign, the computer stopped, and prompted me to talk to the receptionist. She informed me that diagnosis and/or treatment “may be conditioned upon my consent.”

The electronic screen and the paper copy the receptionist gave me said, “The [name withheld] is not required to agree to the restrictions that I may request and may refuse treatment based on my restriction as permitted by Section 164.506 of the Code of Federal Regulations.” 

Suddenly, because I refused the IRS and HHS meddling in my personal health affairs, I had become persona-non-grata (unwanted person) to my doctor who had sworn a Hippocratic Oath to care for me and any patient who comes across his/her path.

In other words, I would not be treated if I did not sign yes. I had the right to say no, don’t give my medical information and history to anyone else but the doctor is not required to honor my request and may refuse treatment to me as permitted by Section 164.506 of the Code of Federal Regulations. In other words the physician, or hospital representative becomes an enforcer of federal law. Taken out the context of real situations it paints a bleak picture of what freedom is not in the U.S.A.

Welcome to the destruction of our stellar healthcare and patient/doctor confidentiality, compliments of Obamacare.

How affordable is this Obamacare, the unfortunately named, the Affordable Care Act? The Democrats and the President said that costs would be so much lower; it would save the typical family $2,500 per year.

The cheapest category of Obamacare is the Bronze Plan which costs $20,000 per year for a family of two adults and three children and it pays only 60% of medical costs after the deductibles for the year have been met. And the deductibles are high per person and per family. The following tiers are Silver (70%), Gold (80%), and During my 30-year teaching career, Dr Paugh goes on to explain, “I seldom had to pay more than $3,600 a year premium for private insurance for my family. Even a retirement private plan did not cost more than $8,000 per year with 80% reimbursement as opposed to only 60% reimbursement under the Obamacare Bronze Plan. Is Obamacare really affordable? The answer is a resounding no.Platinum (90%).”

Everybody’s private insurance has been disrupted and private premiums have escalated,

The federal government has built a data hub to be used only for Obamacare without saying how it will be run. The HHS has released 13,000 pages of regulations with only 30 days for public comment while attempting to re-engineer 17% of the economy. (WSJ, It’s a Mad, Mad, Mad Obamacare, December 13, 2012)

On the deadline of December 14, 2012 states had to declare health insurance exchanges. At that time, only six states (Colorado, Massachusetts, Maryland, Oregon, and Washington) received conditional approval from the Department of Health and Human Services (HHS) to operate their own exchanges. Twenty-six states stated that they will not set up exchanges.

These items are only the tip of the iceberg now showing, the remaking portions (90%) lie below the water line ready to sink the ‘Titanic” of Obama care

More than $719 billion will be taken from Medicare over the next ten years to pay for Obama care. According to Rep. Wally Herger, Chairman of the House Ways and Means Subcommittee on Health, the Independent Payment Advisory Board established by Obamacare is authorized to unilaterally impose price controls and de facto rationing of medical care.

Medicare is already in trouble. Taking $719 billion over ten years from Medicare to fund Obamacare will exacerbate financial problems. Medicare benefits are not a return on taxes paid into the system over time because Medicare is run as “pay as you go” - today’s wage earners pay taxes to fund benefits for today’s retirees. Since people live longer, “Medicare payroll taxes cover only 38 percent of current benefits.” (Rep. Wally Herger)

The Canada Free Press elaborates further.

And this is from a Canadian Press. They are probably wondering, where do we go now?

Friday, March 1, 2013

PatientsLikeMe Is Building A Self-Learning Healthcare System - Forbes

PatientsLikeMe Is Building A Self-Learning Healthcare System - Forbes:

Patient Advocacy sites, and social media such as twitter can be used for population health study such as the study being done at Harvard Medical School (Elysa Weitzman MD)  Social media is gaining credibility if authored by authorities and academia

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Thursday, February 28, 2013

Population Studies using Social Media

 

Physicians are using Social Media to study Populations.

The engagement of Social Media and Population Health by Harvard Medical School Assistant Professor Elyse Weitzman M.D. 

The presentation was sponsored by OREILLY Media, a niche electronic publishing firm is an American media company established by Tim O'Reilly that publishes books and Web sites and produces conferences on computer technology topics. n 1992, O'Reilly Media published one of the first popular books about the Internet, Ed Krol's Whole Internet User's Guide and Catalog.[1] O'Reilly Media also created the first web portal, the Global Network Navigator ("GNN") in 1993; it was sold to AOL in 1995, one of the first large transactions of the dot-com bubble.

 

Goal is how to engage populations and cohorts patients, children and adolescents. Communities according to disease, not just young demographic.

Working with 2Diabetes (online community-virtual) of individuals and families with diabetes..international….run by Diabetes Hand Foundation.

Individuals with most helpful information find one another in online communities. Much less expensive than classical population studies. “Goldmine” of treatments, side effects and questions. Peer-Peer information is unstructured, but can be organized with software. Open loop vs closed loop system.

2Diabetes software authorizes a personal health record controlled by  the individual. It is interactive similar to informed consent and transparency.

Diabetes management, tracking GIS maps for HgA1C. along with social status. Software also allow observation of regional  information, de-identified, with several different graphic presentations.  The information of the individual is overlayed against the regional or state level.

Social Media is an alternative means of gathering population data other than telephone survey, door-door interviews.

Despite skeptics who are naysayers about the use of social media in medicine, Professor  Weitzman proves its utility for population studies.  And the fact that OREILLY MEDIA sponsored this presentation says it all.

Social Media for Senior Citizens

 

Senior citizens often are interested in technology, however by it’s very nature it tends to discourage them.  New tech often is more complex by its very nature, especially in the Windows world. Apple became  successful with well engineered hardware married to a keep it simple mantra for its software.  They also thought out of the box, with iPhone, and iPad.

Jitterbug (a simple flip phone) catering to older patients provides a minimalistic approach in a flip cell phone with large numbers and buttons.

 

Attribution given to: “Techcrunch”

Smartphone design and apps are about to catch up with Fujitu’s Stylistic S-01 .

 

ANDROID BUT NOT AS YOU KNOW IT

Moving on to the software, this is where the phone really stands out from the Android crowd, thanks to a simplified custom UI that foregrounds key functions, tucks away complexity and does a spot of thoughtful hand-holding — with help buttons and guides and even a phone manual included on the device. The homescreen is divided up into large, clearly labelled icons that decrease in size as you scroll down to reach functions that are likely to be accessed less.

The Fujitsu S-01 form is easy to grip, and works well for arthritic hands, the touch screen requires more force to activate it, allowing the user to feel more in control, and not be subject to errors due to fine tremors..

All it needs are a Facebook app, a Twitter client, and Google apps with larger icons.

This device could greatly increase the use of mobile apps among seniors.

Fujitsu is releasing the phone in Europe (France) first.    Mention was made of the Telecom/Orange carrier that will carry the S-01 , and was found at the World Mobile Congress for a hands on demonstration.

Now Fujitsu is not the first to enter the senior mobile space. Other established players include Emporia, which basically makes simplified feature phones, and Doro, which makes a mix of devices (including dabbling in tablet software)

 

HIT & BROADBAND NEEDS

 

Why decisions from the top are often incorrect.  About ten years ago (a century in terms of Internet technology the Federal government committed to spreading broadband across the rural landscape to include and engage more people.

Congress and it’s largesse, along with considerable pork-barrel funded this effort without looking into the finer details…Heads should roll in whatever branch of the U.S. Government signed the checks.  Hopefully an Inspector General can sort this out.

Let’s move over to West Virginia:

High end Cisco Router…$ 20,000 USD installed in rural one room library  Here is a story that every citizen should cry about.  It also points out how vendors game the grant system. (Feds should not announce how much money is to be granted, until after the bidding takes place.)

Attribution given to arsTechnica , an internet publication devoted to technology.

Marmet, West Virginia is a town of 1,500 people living in a thin ribbon along the banks of the Kanawha River just below Charleston. The town's public library is only open Thursdays, Fridays, and Saturdays. It's housed in a small building the size of a trailer, which the state of West Virginia describes as an "extremely small facility with only one Internet connection." Which is why it's such a surprise to learn the Marmet Public Library runs this connection through a $15,000 to $20,000 Cisco 3945 router intended for "mid-size to large deployments," according to Cisco.

SPECIAL REPORT   (click)

West Virginia officials are accused of overspending at least $5 million of federal money on such routers, installed indiscriminately in both large institutions and one-room libraries across the state. The routers were purchased without ever asking the state's libraries, cops, and schools what they needed. And when distributed, the expensive routers were passed out without much apparent care. The small town of Clay received seven of them to serve a total population of 491 people... and all seven routers were installed within only .44 miles of each other at a total cost of more than $100,000. (yes, that was .44 miles, ie less than 1/2 mile apart.

In other words, the project has been a stellar example of what not to do and how not to do it

In total, $24 million was spent on the routers through a not-very-open bidding process under which non-Cisco router manufacturers such as Juniper and Alcatel-Lucent were not "given notice or any opportunity to bid." As for Cisco, which helped put the massive package together, the legislative auditor concluded that the company "had a moral responsibility to propose a plan which reasonably complied with Cisco's own engineering standards" but that instead "Cisco representatives showed a wanton indifference to the interests of the public in recommending using $24 million of public funds to purchase 1,164 Cisco model 3945 branch routers."

A million here, a million there

The routers in question were purchased as part of a much larger grant from the Broadband Technology Opportunities Program (BTOP), which passed out several billion dollars to help upgrade broadband networks across America as part of President Obama's initial stimulus package in 2009. West Virginia's cash was meant to wire up the many "community anchor institutions" such as libraries, schools, police, and hospitals across the state with Internet access delivered over fiber-optic lines.  Instead of "right-sizing" the routers for their intended destinations, the state group of officials charged with implementing the grant decided they would make things easy by purchasing the exact same router and installing it everywhere, even in the most rural locations they planned to reach.

(This was a widespread problem; the report notes no capacity or user needs surveys were ever done before the money was spent). Instead, the team simply ordered 77 Cisco 3945 routers at a cost of $20,661 apiece—that's one $20,000 router for every 13.7 state police employees—and sent them off to the police. (Each router can handle several hundred concurrent users.)

What was the grant team thinking?

The legislative auditor was also apparently quite peeved by this entire investigation. The auditor's office sent off a fairly testy e-mail to Cisco noting that the 3945 routers were not appropriate for most West Virginia deployments—even according to Cisco's own literature.

The auditor asked one of the legislature's network specialists if he would even want a 3945 router; the man said no because "it greatly exceeds the Legislature's needs." And yet somehow more than 1,000 of them had been sent to the very furthest, most rural corners of the state.

Debarment

The State Purchasing division should determine whether Cisco's actions in this matter fall afoul of section 5A-3-33d of the West Virginia Code, and whether the company should be barred from bidding on future projects.

The report finds plenty of blame to go around. The ultimate cause of the fiasco, it says, was the fact the grant implementers did not conduct a capacity or use study before spending $24 million. They also used a "legally unauthorized purchasing process" to buy the routers, which resulted in only modest competition for the bid. Finally, Cisco is accused of knowingly selling the state larger routers than it needed and of showing a "wanton indifference to the interests of the public."

As for that $5+ million the state could have saved, it would have paid for 104 additional miles of fiber.

A word to the wise….All those planning and implementing HIT, HIX and/or EMR deployments need a watchdog to prevent abuse of the HITECH ACT.

Wednesday, February 27, 2013

Alzheimer’s: The Coming Tsunami

 

Join us in a Demonstration of Alzheimer’s Disease

The statistics are frightening. And while this video does not truly represent Alzheimer’s disease it does show the effects of poor vision, hearing, sensory deprivation, neuropathies and auditory hallucinations.

Great Challenges attempts to examine the challenge and possible solutions

By 2020 there will be 43 million Americans over 65 and 15 million over 85 (double the figures of 1980). Almost certainly, we are facing an unprecedented number of mentally impaired citizens.

Not only will this impact the elderly, but their children who must care for them in the face of their very own challenges, in some cases still raising there own children Long term care facilities will be overwhelmed with the need, and the economics require creative thinking.

Perhaps society as a whole must care for it’s aging population by a rotating care giver community. Smaller community homes with 6-10 residents cared for by local families, and friends in addition to professional care-givers.

We have little choice but to prepare as best we can, not live in denial and think out of the box for solutions.

At today’s rate healthcare is 17% of the GDP, and even with cost constraints, the Affordable Care Act and Accountable Care Organizations, it could skyrocket.

People are uncomfortable speaking about death or imminent death…yet we must.

Did the eskimos know something we don’t?  The popular legend that the Eskimos put their old people on ice floes and set them adrift is wrong in detail, but it's not terribly far off in the broad strokes.

In good times, a healthy old person (or child or disabled person) was almost never killed or abandoned merely for being a burden. In the few recorded cases where younger family members did kill their elders without cause, they suffered social stigma, the severest punishment available in traditional Eskimo culture, which was essentially anarchic.

In hard times, older Eskimos often felt they were a burden, and asked their younger relatives to kill them.

None of this is especially comforting when your kids start making noise about putting you in the Shady Rest and how much better it would be than an ice floe. I can only suggest pointing out the economic realities: Even the Eskimos didn't do away with elders who were still providing free room and board.

Hmmmm, maybe I shouldn’t ask my sons to move out…….just yet.

 

Introduction to the Panton Principles

 

Openness and transparency along with patient-centric healthcare go hand in hand.  The copyright rules have changed, with new categories for electronic publishing and a stratification has taken place in copyright notices.  One size no longer fits all.  I call this the Reverse-Spandex theory. Copy right law has been restrictive however it was tailored for previous generations and forbid any reproduction without the author/publisher permission.  Today a Creative Commons License is ubiquitous in electronic publications, to encourage dissemination of information.

The Panton Principle should be familiar to physicians and scientists.  For physicians who are not engaged in clinical or scientific publishing, it may not be well known, but it has great significance for patient-centric medicine and in blogging about health care, and social media

Creative Commons Attribution (the short version) (the legal version).

Please watch the video: (courtesy of The Open Knowledge Foundation)

http://mirrors.creativecommons.org/presskit/buttons/88x31/png/by-nc-sa.eu.png  FAQs

In its simplest form, if the document has the Creative Commons Attribution icon you may use it without fear as long as  you give attribution to its original author.

Openness not only applies to government, but to health care, data bases, and other archived data from many scientific journals as well.

The CCA has and will accelerate the transfer of information, just as social media is accomplishing #hcsm #healthreform #glevin1

 

Will-Virtual-Assistants-Propel-the-Future-of-Medicine-Infographic.jpg (700×3047)

Will-Virtual-Assistants-Propel-the-Future-of-Medicine-Infographic.jpg 

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AAFP Suggests Delaying, Reining in Meaningful Use Stage Three Requirements -- AAFP News Now -- AAFP

AAFP Suggests Delaying, Reining in Meaningful Use Stage Three Requirements -- AAFP News Now -- AAFP:

Push back from the medical community......MU stage III will increase cost to providers to upgrade their EMRs

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7 Nutrients That Cancer-proof Your Body

7 Nutrients That Cancer-proof Your Body:

Yes Virginia, there are steps you can use to reduce your risk of Cancer.  In addition to these listed in the article:

1. Use UV blocker on your skin
2..Reduce your fat intake
3. Control your weight
4. Avoid toxic compounds, and regions that have an increase rate of cancers
5. Live in the far east
6. Do not smoke

In a time when we are hearing how much technology will help your health, the simple things still matter the most.

Men....Despite what CDC said about routine PSA testing for Prostate Cancer, doctors have refuted this advice..Listen to your doctor.

Women:  If you have a family history of Cervical Cancer, or Breast Cancer get a Pap smear once a year, and have a breast examination, as well as a BRCA test.




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Tuesday, February 26, 2013

HIPAA Security Rule

HIPAA Security Rule:  This Special Publication discusses security considerations and resources that may provide value when implementing the requirements of the HIPAA Security Rule.

http://csrc.nist.gov/publications/nistpubs/800-66-Rev1/SP-800-66-Revision1.pdf

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