While the advances in medicine have extended the lives of so many children into adulthood new challenges arise. The numbers of fortunate people surviving places a new challenge for mental health, family relationships, and economic survival. Family and personal relationships are important as well as support groups.
The people surrounding a patient with cystic fibrosis suffer emotionally more than the patieint.
Watch this video for an inspirational story from Claire. Share the message and contribute to the Cystic Fibrosis Foundation.
The Vertex pharmaceutical company in a partnership with the Cystic Fibrosis Foundation have developed a program creating a "pipeline' of genetic treatments for C.F. Many are in Clinical Trials, and many have already been approved. This is a major reason for long term survival of patients with cystic fibrosis.
Live Video: Claire Wineland and Cystic Fibrosis | The Mighty
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Wednesday, February 8, 2017
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